On a day when New York was receiving its share of Hurricane Hannah, we were nevertheless able to enjoy some great family time.
This morning Jilly had a great phone conversation with DonnaFaye. Still not sure why she has to be in this place, Jilly is desperate to do everything on her very complicated fall schedule. I am hoping to persuade her that doing even a part of it will depend on how well she does in all her various therapies. She was at least a bit more respectful to today's substitute occupational therapist, not attempting, as far as I could see, to switch roles with her. Our relationship during her teenage years has resurfaced, as she does her best to bargain with me in pursuit of my help in getting out of the hospital.
When I explained to Jilly today that her neurosurgeons will have to clear her for release, she began to question me about the surgeries. I tried to answer her both directly and delicately, first asking her to stop me if it upset her too much. Luckily, my understanding and my sketching skills are too rudimentary to incorporate many disturbing details--but the explanation still upset Jilly. I do hope telling her about it was not a mistake; I just felt she needed to understand how badly she was hurt as part of the process of accepting the treatment period.
With Jeremy and Katie, we managed to pull off an odd little party in one of the public rooms on the floor. Unsuccessfully tring to dodge the raindrops, Raymond and I were able to find a nearby deli with lovely pasta salads, a small portion of which turned out to be the first full serving of anything she has completed. We also bought some goodies, and of course several delicious beverages.
After this rain, I'm here to tell you that it ain't easy being a New Yorker. Every day wears me out--but Raymond and I (knock on wood) remain in excellent health. Just another in our long chain of post 8/11 miracles.
Our best to all,
Ingrid
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2 comments:
oh! every day is better and better! jillian is an amazing soul and her strength and determination has always and continues to amaze me.
so too does yours and raymond's, ingrid.
all my best,
christa
Dear Ingrid - As a mother, my heart goes out to you so deeply. All of us who know your smart, feisty, beautiful daughter love her so much and are so concerned about her. But there is nothing like a mother's love for her child. I wish you continued strength and courage. I send you the deepest compassion. I hope you are getting the support you need in this difficult time.
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